I recently updated a health record journal that I published almost a year ago. It’s called The Personal Medical Appointment Planner: Be Prepared for Doctor Visits and Emergencies using a Health Record Journal. I have been meaning to get the…
My son was diagnosed with ARFID at 18. But he likely had it since he was a toddler. His pediatrician dismissed it as just being picky and said to just keep putting healthy food in front of him because kids…
PANS and PANDAS are two acronyms that you may have heard thrown around, but what do they actually mean? What is PANS? PANS is short for Pediatric Acute-onset Neuropsychiatric Syndrome. It’s a disorder that can cause sudden onset of psychiatric…
We all know the drill. You wake up, drag yourself out of bed, shuffle through your morning routine like a zombie, and head off to work. You’re so busy taking care of everyone and everything else that you barely have…
As the parent of a special needs child, you know that your plate is always full. There are appointments to attend, therapies to schedule, communication with teachers along with all the normal stuff like work or laundry that seem endless.…
So a few months ago I posted about PANS/PANDAS Progress and ARFID Relapse. So now it looks like we have flip-flopped. He had his last IVIG in June and then went into an eating disorder treatment center in mid-July. He…
I stumbled across information last year about the Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council (PANSAC). The council is hosted by the Texas Department of Health and Human Services and has representatives from providers, legislators, community leaders, and parents. Each quarter…
I feel like I am forging a path through the jungle. I have my machete, my bug spray, and a treasure map with a big “X” on it. But that’s it. No GPS. No voice telling me to turn left.…
Note: I don’t use his name because he’s an adult and he prefers to stay anonymous. No worries kid… I got your back. This is the story of my son’s long road to recovery. From what? At the time, I…